Why I Wrote Drawing Breath

May is Cystic Fibrosis Awareness Month. I didn’t know much about cystic fibrosis until I met Bill Fiscaletti, many years ago. He attended the same high school as my husband. The two were introduced through their art teacher and became friends. When I came on the scene a few years later, Bill was a pretty brilliant painter and actively involved with community theater. We’d come to his plays and meet afterward for dinner. When he talked about CF it was mainly to rage about medical funding and why AIDS got all the research money when there were more kids dying from CF. Otherwise, he treated it as a fact of his life. Sometimes he had to go for treatments, sometimes he got sick, and my husband visited him in the hospital. Sure, he coughed, but after a while you just got used to it, waited until he was done, and continued the conversation. Bill was just Bill, not a guy with a disease. Continue reading